The significance of maintaining health and well-being cannot be overstated, especially for individuals living with epilepsy, where the impacts of poor physical health, mental well-being, and overall quality of life can be particularly profound.
Contrary to common misconceptions, research has shown that exercise can be beneficial for individuals with epilepsy, provided it is approached with caution and at a pace that suits the individual’s comfort level. Torie, an advocate for epilepsy awareness, stresses the importance of taking it slow and gradually building confidence in exercise routines. She shares heartening anecdotes, illustrating how even simple activities like playing with streamers can bring joy and physical engagement to individuals with epilepsy, including those with additional challenges such as physical disabilities.
However, Torie also emphasizes the need for awareness of potential limitations and considerations unique to each individual with epilepsy. The diverse nature of the condition and its associated comorbidities necessitate personalized approaches to exercise and well-being.
Acknowledging the fatigue resulting from seizures, mental health issues, and medication side effects, Torie urges individuals to prioritize self-care and consult healthcare professionals for tailored guidance. She highlights the importance of recognizing and celebrating small achievements, particularly in light of the prevalent depression and memory issues among those with epilepsy.
Beyond exercise, Torie advocates for holistic approaches to well-being, including education about epilepsy, maintaining daily routines, and fostering supportive relationships. She encourages open communication and vulnerability, both for individuals with epilepsy seeking support and for those supporting them.
Torie underscores the value of recognizing shared experiences across different health conditions, promoting empathy and understanding. She shares personal strategies for maintaining mental and physical well-being, including prioritizing sleep, limiting caffeine intake, engaging in therapy, and finding joy in simple pleasures like caring for plants.
In commemorating International Epilepsy Day, Torie encourages continued efforts to raise awareness and promote understanding of epilepsy. Through her podcast series and online resources, she aims to provide valuable insights and support for individuals living with epilepsy and those seeking to learn more about the condition.
To learn more about epilepsy and access Torie’s resources, visit her website at torierobinson.com and the , epilepsysparks.com and join in supporting the initiatives of the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE).
