AbbVie has unveiled key findings from its latest Emotional Impact Report (EIR), offering insights into the mental health challenges faced by patients with chronic lymphocytic leukemia (CLL). For the first time, the survey highlights the unique emotional experiences of Hispanic, Black, and Asian patients with CLL, providing a lens into the cultural, financial, and psychological barriers they encounter during their cancer journey. The results were shared at an event alongside the 66th American Society of Hematology (ASH) Annual Meeting.
CLL patients often struggle with the psychological burden of living with a slow-growing cancer said Dr. Andy Souers, Vice President of Oncology Discovery Research at AbbVie. “This report focuses on amplifying the voices of underrepresented communities, helping us better understand and address their specific needs.”
Cultural Influence on the CLL Journey
Cultural norms significantly shape the patient experience. The report revealed that many diverse patients (45% Asian, 38% Hispanic, 24% Black) feel a strong need for culturally tailored educational and emotional resources—compared to only 2% of Caucasian patients. Additionally, over a third of ethnically diverse respondents prefer healthcare providers who share their race or ethnicity. However, these groups underutilize online support resources, with usage rates as low as 19% among Hispanic patients.
Emotional Challenges at Diagnosis
Fear and surprise were the most common emotions reported upon diagnosis across all groups, but the emotional burden was often more pronounced for diverse patients. For example, 72% of Hispanic patients reported uncertainty about next steps, and over 30% felt unheard when describing their symptoms. Financial concerns also weighed more heavily on diverse groups, with 53% of Hispanic, 39% of Asian, and 35% of Black patients citing financial challenges, compared to 18% of Caucasian respondents.
Gaps in Patient-Physician Relationships
The survey uncovered significant gaps in communication between patients and healthcare providers (HCPs). Less than half of respondents, regardless of ethnicity, felt adequately supported by their doctors in addressing the emotional impact of their disease. Many diverse patients expressed a desire for longer consultations to discuss mental health, and only about half of Black patients reported effective collaboration with their HCPs on treatment goals.
“Building strong patient-physician relationships is crucial,” noted Dr. Brian Koffman, Chief Medical Officer of the CLL Society. “Open conversations about emotional needs can empower patients and help them navigate their journey with greater resilience.”
Next Steps
AbbVie plans to collaborate with patient advocacy groups to develop actionable solutions based on the report’s findings. By addressing the emotional and cultural barriers uncovered in the survey, AbbVie aims to ensure all patients receive personalized care that supports their mental well-being alongside their physical health.
The 2024 U.S.-based survey included responses from 232 participants, representing a mix of ethnic backgrounds. AbbVie continues its commitment to improving care and expanding understanding of the emotional impact of CLL for all communities.
For more information, including a summary of the survey findings, visit AbbVie’s Emotional Impact Report resource page.
