New website and Twitter channel aim to help the HD community understand what to expect with HD chorea and how to talk to a healthcare provider about preserving independence for as long as possible
Teva Pharmaceuticals, aU.S. chapter of Teva Pharmaceutical diligenceLtd.( NYSE and TASE TEVA), moment blazoned the launch of the Actually HD website, which aims to give information, alleviation and coffers to help people understand what to anticipate with Huntington’s Disease( HD) chorea – one of the most visible and treatable symptoms of HD – and, how to talk to their croaker
about conserving independence. In addition to the recently launched point, a Twitter channel,@HonestlyHD, has launched to further support the HD community and expand the coffers formerly available through the Actually HD Facebook community, which provides a virtual space for participating particular stories and coffers.1
HD is an inherited complaint in which whim-whams cells in the brain break down and are irreversibly damaged.2, 3 Ninety percent of people with HD will develop chorea, a movement complaint in which abnormally high situations of dopamine in the brain cause involuntary body movements similar as wriggling, writhing, or jerking that can affect the hands and face, branches and torso or speech and mobility.1, 4 While it’s not the only symptom of HD, chorea can have a significant impact on diurnal conditioning and precipitously limit peoples ’ lives.
“ There’s an immense quantum to know about HD, which can lead to feeling overwhelmed and confused. While there’s no cure for HD, numerous symptoms can be managed, helping to ease some of the challenges of living with the complaint. Early treatment of chorea, for illustration, can help you stay independent longer, ” 2 saidDr. VictorW. Sung, Chair of HDSA’s National Board of Trustees, Director of HDSA Center of Excellence, Alabama. “ Actually HD provides cases and families affected by HD a central place to pierce helpful information and coffers, as well as hear about the gests of others to feel a sense of community. ”
In addition to furnishing information about HD and chorea,HonestlyHD.com features helpful coffers, including way to help people decide how and when to address HD chorea, a HD chorea discussion companion to help cases and their care mates prepare for croaker
’s movables , and stories from cases and watch mates about their gests .
“ The progressive nature of HD can produce passions of insulation for cases and their families, and makes planning ahead pivotal, ” said Michelle Roberts, MBA, MSN, NP, Senior Director, Medical Patient Advocacy, Teva Pharmaceuticals.1 “ Our stopgap is that in addition to furnishing information and coffers to prop in managing HD chorea symptoms and planning for the future, Actually HD fosters a probative and inspiring community so cases and their families do n’t feel alone. Actually HD underscores our commitment to supporting cases as they face the numerous complex challenges of living with a degenerative complaint, and hopefully provides them with some practicable way they can take to potentially reduce complaint burden. ”
To learn more, please visitHonestlyHD.com or@HonestlyHD or join the community at Actually HD.
Teva Pharmaceutical diligenceLtd.( NYSE and TASE TEVA) has been developing and producing drugs to ameliorate people’s lives for further than a century. We’re a global leader in general and specialty drugs with a portfolio conforming of over,500 products in nearly every remedial area. Around 200 million people around the world take a Teva drug every day, and are served by one of the largest and most complex force chains in the pharmaceutical assiduity. Along with our established presence in generics, we’ve significant innovative exploration and operations supporting our growing portfolio of specialty and biopharmaceutical products.